Rare Cancers Europe
This is an ongoing partnership initiative in which ESSO is involved in the same way as professional societies, cancer/rare diseases/rare cancers associations, networks and reference centres, research organisations and institutes, professional education and training organisations, patient advocacy groups, and industry.
Rare Cancers Europe (RCE) has launched the Call to Action that urges policy-makers and stakeholders to give priority to rare cancers. In particular it is campaigning to: 1) foster the creation of reference networks for the treatment of patients with rare cancers, 2) spread knowledge and clinical guidelines on rare cancers, 3) promote the establishment of clinical databases and registries and 4) empower patients.
For further information please click here.